End of life care is support for people who are
in the last months or years of their life.
End of life care should help you to live as well as possible until you die, and to die with dignity. The people providing your care should ask you about your wishes and preferences, and take these into account
as they work with you to plan your care. They should also support your family, carers or other people who are important to you.
You have the right to express your wishes about where you would like to receive care and where you want to die. You can receive end of life care at home or in care homes, hospices or
hospitals, depending on your needs and preference.
People who are approaching the end of life are entitled to high-quality care, wherever they’re being cared
for. Find out what to expect from end of life care.
Who provides end of life care?
Different health and social care professionals may be involved
in your end of life care, depending on your needs. For example, hospital doctors and nurses, your GP, community nurses, hospice staff and counsellors may all be involved, as well as social care staff, chaplains (of all faiths or none), physiotherapists, occupational
therapists or complementary therapists.
If you are being cared for at home or in a care home, your GP has overall responsibility for your care. Community nurses usually visit you at home, and family and friends may be closely
involved in caring for you too.
What is palliative care?
End of life care includes palliative care. If you have an illness that can’t be cured, palliative care makes you as comfortable as possible, by managing
your pain and other distressing symptoms. It also involves psychological, social and spiritual support for you and your family or carers. This is called a holistic approach, because it deals with you as a "whole" person.
care isn’t just for the end of life. You may receive palliative care earlier in your illness while you are still receiving other therapies to treat your condition.
Who provides palliative care?
Many healthcare professionals provide
palliative care as part of their jobs. An example is the care you get from your GP or community nurses.
Some people need additional specialist palliative care. This may be provided by consultants trained in palliative medicine, specialist palliative
care nurses or specialist occupational therapists or physiotherapists.
Palliative care teams are made up of different healthcare professionals and can co-ordinate the care of people with an incurable illness. As specialists, they also
advise other professionals on palliative care.
Palliative care services may be provided by the NHS, your local council or a charity.
When does end of life care begin?
End of life care should begin when you need it
and may last a few days, or for months or years.
People in lots of different situations can benefit from end of life care. Some of them may be expected to die within the next few hours or days. Others receive end of life care over many
People are considered to be approaching the end of life when they are likely to die within the next 12 months, although this isn’t always possible to predict. This includes people whose death is imminent, as well as people
have an advanced incurable illness such as cancer, dementia or motor neurone disease
are generally frail and have co-existing conditions that mean they are expected to die within 12 months
existing conditions if they are at risk of dying from a sudden crisis in their condition
have a life-threatening acute condition caused by a sudden catastrophic event, such as an accident or stroke
The National Institute
for Health and Care Excellence (NICE) produced new guidance in December 2015 on the care of adults in the last two to three days of life. This guidance covers how to manage common symptoms, and dignity and
respect for the dying person and their relatives and carers.
How do I find out about end of life care services in my area?
If you are approaching the end of life, or caring for someone who is, and you want to find out about the
care and support available, your first step is to speak to your GP or to call the number your healthcare professionals have given you.
Part of their job is to help you understand which services are available locally. You can ask about all sorts of help – for
instance, there may be particular night-time services they can tell you about.
You can also use the "Services near you" search on this page.
Find Me Help has a directory of services for people in the
last years of life, their families, friends and carers, based on where you live.
You can search for a wide range of practical, financial and caring services – for example, getting help around the house, taking control of your finances
or speaking to a counsellor.
Carers can search for different kinds of support, including medical help, respite cover, carers’ support groups and bereavement services.
In this end of life care guide, "end of
life care" also covers legal issues to help you plan ahead for your future care. These include creating a lasting
power of attorney, so that the person or people of your choice can make decisions about your care if you are no longer able to do so yourself.